Adoption of Patient-Generated Health Data in Oncology: A Report From the NCCN EHR Oncology Advisory Group

Journal of the National Comprehensive Cancer Network, 2022

Plain-language summary

This report from an NCCN advisory workgroup surveyed member cancer institutions to assess how widely patient-generated health data, such as patient-reported outcomes, is collected and integrated into electronic health records. Among the 23 responding institutions, use of such data was nearly universal and most embedded at least some of it into their EHRs, though many still relied on tools that were not fully integrated and governance practices varied. The authors conclude that patient-generated health data has not yet reached its full potential in oncology and recommend steps including governance processes that include patients.

Read the full paper (DOI: 10.6004/jnccn.2021.7088).

This is a plain-language summary written for discoverability; the authoritative version is the published paper. Part of Travis Osterman's peer-reviewed publications.